Research institutions should aim to have proper consent practices that maximize their ability to collect and use patient information.
“Most patients would donate their health data and biospecimens for biomedical research, but few are willing to share everything, and institutions’ current consent practices don’t accommodate this, a study found.”
“The findings indicate more research institutions should shift how they ask patients for permission to use their data from an all-or-nothing approach to one that relies on a tiered consent model that allows for partial use of electronic health information.”
“Notably, the study found more than three-quarters of those surveyed had at least one item they didn’t want to share for research”.
“The status quo of completely removing such patients from research means institutions could be leaving out people who would participate under a tiered consent model.”
More details on Bloomberg.